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I tested positive for ANA antibodies, pattern speckled. One test was positive for lyme but further testing I was positive for one band #23. HLA came out positive....[more]Read more
I am a medical professional who was told by a neurologist to get tested for Lupus because I had a butterfly rash across the cheeks of my face. ANA test came back negative. 4 years later I get scabs in my hair and my hair fall out....[more]Read more
I am new to sharing any stories about Lupus. I was diagnosed with SLE and Fibromyalgia 3 years ago. Since my diagnosis I have noticed that my co-workers even after me explaining what Lupus is I have been told that "You should just leave, w...[more]Read more
I have had odd symptoms for the past 2 years now, weird tingling sensations, mental fog, joint pain and extreme muscle spasms, random onslaughts of diarrhea, pain behind my left eye, numbness in my extremities, general malaise and fatigue,a...[more]Read more
My daughter, who is 14, has been presenting with symptoms that are making me think of Lupus. She already had damaged kidneys from a birth defect that was corrected when she was 2, but before it got corrected her two kidneys were damaged gi...[more]Read more
I know this site said only 10% have a family member with lupus. Well my Maternal Grandmother has Lupus, as well as two of my maternal aunts. My mother has not been diagnosed, and neither have I....[more]Read more
i went to the doctor and she gave me a blood test and it said i have lupus...i been having bad..bad back pain my feet swell up all the time ..i have pains in my head.i have dry eyes feels like sand is in them..my neck hurts at times i have ...[more]Read more
It's been a difficult road with fibromyalgia and I've been wondering lately if it might be lupus that I suffer with. I really would like to know for sure because I need to treat myself for the right disorder. For ten years I've l...[more]Read more
I went to urgent care last night because I have had some strange symptoms recently. I was absolutely shocked that the first thing out of the doctor's mouth was a suspicion of Lupus.
A couple weeks ago, I developed redness in the white...[more]Read more
Hi! I have been having problems with low-grade fevers for the last few years, mostly between 99.4 and 100.6. When I was a teenager, I was diagnosed as having a false "SLE" cell....[more]Read more
I just turned 24 and finally got a blood test. I have had the symptoms half of my life but this past month was unbearable. I grew up through high school with teachers yelling at me for walking to slow between classes....[more]Read more
I first heard of Lupus when pregnant with my first of three children because my ANA was "borderline" high at the time. My OB wasn't too concerned after seeing no other signs. Then in my 30's I had high ANA levels with my 2nd and 3rd...[more]Read more
It is hard to find good and prompt service in some of these doctor's office. I think we need to demand answers, great services, and prompt responses to our concerns and needs. We are paying for these services and they are not at a redu...[more]Read more
I was Dx with Lupus in the 1980's I have been told by my doctors I have seen all this time that I have it I have frequent remissions, and less exaserbations.( We have moved several times and this last doctor said he lost my chart. I went...[more]Read more
I had a seizure last week while I was home alone with my two year old. Many of my tests point to lupus. Butterfly rash (which I have been told is roseacea but nothing helps) and elevated ANA and joint and muscle pain.......[more]Read more
I'm 13 going to be 14 in July i have many of the symptoms And my moms doctor says i need to be tested my mom has had lupus sense i was 4 and has been in and out of the hospital for many years until she got her kidney transplant... Some d...[more]Read more
I took birth control for ten years. I wonder how many of us have and if there is a connection to Lupus and Fibromyalgea.
I have been sick for years and nobody knows why....[more]Read more
I have been struggling for 16years with the symptoms of Lupus.
I have insisted that medications make me much worse but doctors saw me as obstructive if I didn't take prescribed drugs.
It has taken much research on my part and I have ...[more]Read more
I am 17 years old and have a blood clotting disorder. I have chronic head aches all the time and i have the worst pains in my joints. Mainly my knees and fingers....[more]Read more
I have gone to Mt. Sinai health center clinic in New york for over a year now . I have told them all of my symptoms and I have been basically sent home and scared to death....[more]Read more