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you can be heard in an open forum on topics that are important to you. You’ll find hope, insight, answers, and the awareness that if you are suffering from lupus, you are not alone. We invite you to share your own story and take part in the discussion.
Join in. We’re listening.
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I knew something was very wrong for at least the past 4 years and 6 months ago when the rashes started I knew for sure that I have Lupus. I have every symptom and more. My grandmother had Lupus and died a few years ago....[more]Read more
I have been having on going problems for the past 6 years. I can relate to some of the symptoms of lupus.I thought it was menapause symtoms that I was going through.My ANA test came back slightly under normal. Now I'm stressed out thinki...[more]Read more
Hi my name is Cielo, I always had a an Explanable body ache and flu sympton for almost 1 yr, and half, then my doctor finally order a series of lab works, and my ANA came out positive is that's means I have lupus.
Hello everyone. My name is Jan. I'm 35 and have been struggling with lupus symptoms for almost 10 years now....[more]Read more
I was diagnosed with lupus last May. My lupus symptoms started with the rash on the face, arms, and chest. This made it hard to diagnose because rashed are caused by several different things....[more]Read more
My lupus was diagnosed 1,5 years ago. It startet with a rash on my abdomen around spring time and got worse during summer (red and itchy). I went to see my dermatologist....[more]Read more
Do any of you have the Lupus Rash on Your Nose,Cheeks, Sometimes Forehead Chin, And I even Look Like I Have A Red Mustache, It Is Sooo Irritating And Embarrasing ?...[more]Read more
I have been having problems for over a year with regard to a rash and swelling around my eyes. I have only tested positive to nickle. But the dermatologist asked me if I had been tested by my primary care MD for Overlappign Connective Tis...[more]Read more
I have a serious issue here, I was pregnant with my son in 2002 and was diagnosed with lupus and was on IV/IG therapy for the last half of my pregnancy and heprin on the first half. I have EXTREMELY low platelets. I thought and was told it...[more]Read more
I'm a 33 yr old female. For years now I've been struggling with low energy levels, debilitating headaches and constant yeast and bacterial infections. I stay out of the sun because it drains all my energy, and I recently developed a r...[more]Read more
Greetings! I am a 35 year old female. Last year I started noticing that my gums were swollen....[more]Read more
I'm a generally healthy, 43 year old with a history of hypothyroidism. My nightmare started this past April with shortness of breath and chest pain. This lead me to the ED only to be admitted overnight as an observation patient in the ...[more]Read more
Hi everyone. I have had some symptoms for quite awhile, and I just wanted some opinions on whether or not it could be Lupus. I have been suffering from low back/hip/knee/shoulder pain for the better part of 3 years....[more]Read more
I'm not sure if I have Lupus or not, doctors have suggested I have symptoms, but say test are negative....[more]Read more
I have always had poor health. Constitly getting sick with some infection or other. Then when I was seventeen I had a seizure....[more]Read more
I have been diagnosed with costochondritis five years ago and have been through the gauntlet of tests and meds. Nothing has helped. I also have spots on my legs that sometime itch and scab over....[more]Read more
To start with lets just say that I had no insurance and was scared of what going to the doctor may bring.
One day I had joint pains, in the knees, and in my ankles....it was so painful. I looked it up and just tried to eat better, healthy...[more]Read more
Hello, my name is Gladys Ijelu and I have been fighting against lupus for 6 years now. Growing up, I was one of the most happy, fun- loving and most importantly, healthiest children amongst my youth. Although my mom's side of the family...[more]Read more
Do you think my symptoms sound like lupus?? Doctors are unable to diagnose my "mystery illness" after countless blood tests....
I was diagnosed with Polycystic Ovarian Syndrome 2 years ago, so my ANA test always comes back positive for ...[more]Read more